FEVR.net - Information about Familial Exudative Vitreoretinopathy, its treatment and research.
Retina Information Source - A complete, graphic, descriptive guide to these eye conditions, their causes, treatments and options.
Sorsby's Retinal Dystrophy Registry - Established by the Department of Ophthalmology at Stanford University, to advance understanding and treatment of Sorsby's fundus dystrophy.