Association for Spina Bifida and Hydrocephalus - UK website containing a large selection of informational articles and provides information about current research projects being funded.
Australian Spina Bifida and Hydrocephalus Association - National organization acting as the peak body for information and support. Provides opportunity to email questions to an expert, fact sheets and contact information.
Spina Bifida Association of America - Voluntary health agency dedicated to education, advocacy, research and service. Has a presence in more than 125 communities nationwide.
Spina Bifida Association of Kentucky - Educates, supports those affected, and strives to prevent this birth defect. Includes programs and member activities, a calendar of events, volunteer opportunities, a newsletter and membership information. Located in Louisville.