Friends of Alexander Deihl - A non-profit organization established to help children and their families who have been affected by a crippling disorder or are terminally ill. About Menkes' Syndrome with support.
Menkes Disease - An information sheet this disease including treatment and prognosis.
Menkes Disease - Medical information including pathophysiology, causes, clinical features, laboratory and histological findings. Also includes images.
Menkes Support Group - At eGroups: Open to anyone interested in making friends, sharing information and providing support for persons affected by "Menkes Kinky Hair Syndrome"
Menkes Syndrome - In depth look including clinical and biochemical features, molecular genetics, diagnosis, clinical management and references.